In this moving and challenging documentary we tell the story of the Bowen family following the tragic death of Bethany during ‘routine’ surgery and subsequent sudden death of father Richard aged 31, following the trauma of his daughter’s death and the ‘torture’ of the inquest.
In this short film Julie explains how a series of “everyday” communication failures conspired to create delays in her receiving effective treatment. These delays and the resultant risk to her life led to a slower physical and psychological recovery and in Julie’s view were very probably avoidable.
In this article, recently published in the British Medical Journal, Jane Feinmann, Medical Journalist & PATIENTSTORIES regular contributor explores why “being open”, despite significant effort and attention is proving such a struggle for the NHS. The Command paper published on Monday 20th June 2012 suggested that a statutory “duty of candour” would form part of […]
In 2007 when Paul Richards was diagnosed with non-Hodgkin lymphoma his family were stunned by the news. This powerful film is based on the testimony of Lisa, Paul’s wife who gives a moving account of the events that led to Paul’s death and explores the effects on their family.
Speaking shortly after the publication on his Inquiry report Robert Francis QC reflected on his experience of the complaints system at Stafford Hospital saying: “Complaints were made but depressingly there was a pattern. There would be a complaint, there would be a formal response and an apology plus an action plan that would not be […]
This is a moving and challenging drama-documentary that tells the story of Alexandra, who died as a result of a spinal injury aged 3 days. In this powerful and often distressing account of their experience, Beatrix explores the decisions made about her care before, during and after Alexandra’s birth, and the factors that she feels led to their daughter’s injuries.
We have now launched three new short films which explore the lessons that can be learnt from the tragic and powerful story of Bethany Bowen (as told by Clare Bowen in our film “Beth’s Story“) These films explore a range of issues illustrated by the film with analysis from expert commentators including journalist and broadcaster […]
Gillian James, a former nurse, lived largely independently with progressive multiple sclerosis for more than 30 years. This film tells the story of the care she received in a number of settings during the last sixteen months of her life.
PATIENTSTORIES has just produced a range of Facilitator’s Guides to accompany each of our films. These have been designed specifically to complement Beth’s Story, Julie’s Story and Peter’s Story and help those using our films to explore key themes. Each guide suggests formats for facilitated sessions and offers prompter questions to elicit further discussion and […]
Last month in collaboration with the Health Experiences Research Group at the University of Oxford and with financial support from the Health Foundation, PATIENTSTORIES co-hosted a dinner and one day meeting to share and explore different methods and approaches associated with representing experience. Participants from a wide range of organisations who use creative media in […]
On the 10th October the Department of Health (DH) launched a consultation on the contractual duty of candour. In short the DH is proposing, as part of the new Health and Social Care Bill, that a contractual duty of candour will be placed upon the provider. The consultation asks for views on how to design […]
On 9 June 2010 the Secretary of State for Health, Andrew Lansley MP, announced a full public inquiry into the role of the commissioning, supervisory and regulatory bodies in the monitoring of Mid Staffordshire Foundation NHS Trust. The Inquiry is established under the Inquiries Act 2005 and is chaired by Robert Francis QC, who will […]
Murray Anderson-Wallace Whilst most practitioners, managers and clinicians might accept that the experience of the people that they care for and treat is an important aspect of patient safety improvement, the practices associated with this work are still relatively new and underdeveloped. Engaging patients, relatives and carers in ways that use their knowledge and experience […]
PATIENTSTORIES is all about culture change. Whilst most practitioners, managers and clinicians see experiences of patients as an important aspect of patient safety improvement, the practices associated with this work are still relatively new and underdeveloped. Engaging patients, relatives and carers in ways that use their knowledge and experience to directly influence and build the […]
By Jane Feinmann There is no doubt that for most women in this country, childbirth remains a safe and happy experience. But it is also true that for too many, it is a highly risky and frankly horrific experience. Stories abound of mothers-to-be left alone in labour, sometimes refused pain relief or surgical intervention, putting […]
We recently supported the launch of the new Private Eye sponsored website www.medicalharm.org The website features many accounts of those who have tried to raise concerns about standards of care and patient safety but have struggled to be heard. PATIENTSTORIES contributed a written account of Beth’s Story which illustrates the role that assertive patients and […]
by Phil Hadridge The same hospital One of the very best in the NHS They say Within 3 days Two people Two treatments One involved stitching a gashed chin A running accident The other a rapid assessment with an invasive and non-invasive test What was striking? The quality of the fabric – clean, tidy The […]
Telling the truth – how patients’ stories can teach doctors the importance of open disclosure by Jane Feinmann When Clare Bowen’s daughter Bethany died during routine surgery in 2006 aged five years old, the tragedy could hardly have got worse. But it did. Just 19 months later, Clare’s husband, Richard, died of a heart attack […]
My attention was recently drawn to this article published in the Journal of Patient Safety (March 2010 – Volume 6 – Issue 1 – pp 5-14) Story Power: The Secret Weapon is authored by Dennis Quaid, Julie Thao and Charles Denham all of whom have very personal experience of harm in the healthcare context in […]
I began studying safety and quality in surgical care on the first of April 2003. Up to then, my work had involved developing technology and systems to help improve human performance in a range of other industries, including working with pilots on safety skills and with x-ray screeners at airports to improve the detection of […]